Children with celiac disease: Health-related quality of life and leisure participation

By: Meyer S., Rosenblum S.
Published in: American Journal of Occupational Therapy
SDGs : SDG 03  |  Units: Social Welfare & Health Sciences  | Time: 2016 |  Link
Description: OBJECTIVE: We compared health-related quality-of-life (HRQOL) perceptions of children with celiac disease (CD) with thos e of their parents to determine whether their leisure participation differs from that of children without CD and whether relationships exist between leisure participation and HRQOL. METHOD: Children with CD and their parents completed a disease-specific HRQOL self-report questionnaire, the Celiac Disease DUX. These children and matched controls without CD completed the Children's Leisure Assessment Scale (CLASS). RESULTS: Parents perceived HRQOL significantly more negatively than did children. No significant group differences were found in leisure participation. However, specific CLASS food-related activities and HRQOL significantly correlated. CONCLUSION: Hearing the child's voice in addition to the parents' is important in determining the HRQOL of children with a chronic condition. Findings contribute to understanding of CD in the context of participation and well-being and can lead to development of occupational performance-based assessments and interventions for children with CD.